An Introduction

imageHi, I’m Hannah, I’m 22 and this is my 10th year of having severe M.E (Myalgic Encephalomyelitis), a condition that majorly restricts my life and mobility, leaving me to be bed / wheelchair bound. If you’re unsure of what M.E actually is, it’s a condition that attacks your immune system and causing extreme pain, fatigue, migraines, brain fog, weakness, (the list is pretty endless for severe sufferers unfortunately).

I wanted to start this blog for many reasons really, one of which is to raise awareness for such a misunderstood and ignored illness and spread the message of awareness with the help from the M.E community. Another major reason was, something to occupy my time with. It gets very tough to say the least being stuck in bed the majority of the time and I need an outlet, a way of still being creative, to enable me to express myself and hopefully help others on this chaotic and somewhat scary journey of chronic illness.

In the past I’ve unfortunately encountered several M.E groups that have been more depressing and triggering for me than anything else, which is most definitely not what we’re looking for in that type of group. We all know the realities of this illness, but triggering anxiety is the last thing I was hoping for. So my aim is to shed some light and hope within the community, though that may seem very few and far between at times, positivity is key and holding onto that spark of hope is invaluable.

I turn 23 next Saturday, which will mark nearly 10 years of living with this illness; an incredibly scary prospect for a young woman to face, thinking the past 10 years of my life have been spent in hospitals, units, nursing homes and throughout it all being confined to a bed or a wheelchair. This is unfortunately the sad truth of living with a severe chronic illness such as M.E and some of which people are completely clueless about. It’s not something that’s spoken about or maybe more so than that, it’s not something that’s heard enough!

I’m unsure at the moment how often I’ll be blogging; obviously it depends on how well I may feeling on that particular day. But I’m determined to build a blog where I and other M.E sufferers can be wholeheartedly honest about our condition and with that spread as much awareness as we possibly can. Having an outlet such as this is vital and I’m very much looking forward to blogging more about the chaos I call my life.

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6 thoughts on “An Introduction

  1. Hi Hannah,

    Happy birthday my love for Saturday.

    Thank you for sharing this with me, you write very well and I am always hear to read what it is you have to say. Full of admiration for you.

    Lots of love
    Shannon (just a girl you, that you use to play with in primary, never seen since) xxxxx

    Liked by 1 person

  2. So good & brave that you are trying to put your life out there for people to realise how devastasting this ME can be. I understand as I have two friends with the same condition but this will get it out there for more people to understand! I wiah you every success with what you are trying to do – good luck to a brave girl xx

    Liked by 1 person

  3. Hang in there brave girl. I have had M E for 20 years now but with severely pacing myself I have very gradually managed to do more and my life is far more fulfilled. I still have set backs. Overdoing things has always been something I am good at. Sometimes i slip down the slippery slope and feel as though I’m never going to improve. But I do and with forced patience and what feels like laziness I gradually start to achieve more. Two things have helped me most. Pacing myself and accepting only slight improvements in what I can do and secondly forcing myself to smile. Smiling releases endorphines which make you feel more like smiling and this helps you to be postive. Of course being surrounded by people who dont expect too much from you also helps, and not expecting too much from yourself. A book by a doctor who himself suffered the illness helped. I think his name was Dr Shepherd
    Take each day as it comes. Don’t push yourself but have small achievable things lined up to help yourself feel as though you are achieving something. Only do small amounts of physical or mental work. Both make you tired. Chop and change what sort of things you are doing.
    May God be with you in your fight and may he bring you acceptance to live for each day as it comes….really hard I know
    Ann

    Liked by 1 person

    1. Thank you so much for your lovely message Ann, it really means a lot to hear from another M.E. sufferer and fighter. I’m so glad to hear you’re doing better than you were, that’s wonderful! It’s most certainly a long haul with this illness! I will definitely be checking out Dr. Shepherd.
      Thank you for the kind words, advice and inspiration; greatly appreciated Ann. 🙂 xx

      Like

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